Frequently Asked Questions About Cystic Fibrosis

The following frequently asked questions about cystic fibrosis (CF) may answer many of your questions.

Why is it important to meet with the entire CF team during my clinic visits?

Cystic fibrosis is a disease that affects multiple systems in the body. Each of our team members focuses on a specific area or system in depth, and has expertise in that particular area. By meeting with the whole CF team in regular clinic visits, you are obtaining the best care available.

What do I need to bring with me to my clinic appointment?

  • Insurance information
  • List of current medications you are taking
  • List of questions or concerns you may have

Will dairy products cause more mucus in my lungs?

Generally, the answer is no. Some people are known to have allergic reactions to dairy products which can cause a buildup of mucus in the respiratory tract. However, the vast majority of individuals can consume dairy products without worrying about mucosal buildup.

Why do CF patients still need to do airway clearance even if they are feeling well?

Airway clearance takes a while to do, but if it is not done, it is worse for your lungs in the long run.

I read about a new CF treatment in a magazine. Should I try it?

Treatment of cystic fibrosis is evolving every day. We are happy to discuss with you any new treatment you have read or heard about, but we strongly discourage patients from trying anything new until discussing it with their CF Center physician.

My CF doctor told me to eat a diet high in fat and calories. Do I need to worry about cholesterol and heart disease?

Patients with cystic fibrosis often have a difficult time absorbing fat from their diet. To compensate, a high-fat diet is prescribed. Much of this fat travels through the digestive system and is never actually absorbed by the body. In the end, the amount of fat or cholesterol absorbed in a CF patient on a high-fat diet will be comparable to the amount absorbed by a patient without CF on a regular diet.

Exercise and a healthy lifestyle can help all people to avoid heath problems including heart disease. The American Heart Association offers diet and exercise suggestions.

How can I get on the New Hampshire CF Center mailing list?

Contact us!