Neuromuscular Observational Research (MOVR) Data Hub

Principal Investigator

Victoria Lawson

Study Number

F20107

Summary

The main reason the MOVR Data Hub is being set up is to monitor important trends in the population of individuals with neuromuscular conditions, to improve understanding of the causes of illness, and to study the genetics (DNA) associated with neuromuscular conditions, disease progression, treatment, outcomes, and survival. DNA is in your cells, and it?s what makes you different from everyone else. DNA controls things like the color of your hair or eyes. DNA might make you more likely to get certain diseases or could affect whether a drug helps you and/or gives you side effects. In addition, the MOVR Data Hub provides information for biomedical research and for the research and development of drugs, biologics, and medical devices. The MOVR Data Hub is also a source of information regarding potentially applicable clinical trials for interested individuals who may be eligible.

Phase

N/A

Available at the following location(s)

• Lebanon

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