HOBSCOTCH training changes lives in post traumatic epilepsy (HOBSCOTCH-PTE)
An Innovative telehealth approach for people with Post Traumatic Epilepsy and their caregivers
About 2.87 million people in the United States suffer a traumatic brain injury (TBI) each year. Following a brain injury, there is an increased chance of developing post traumatic epilepsy (PTE). Cognitive challenges, such as issues with memory, attention, and thinking commonly accompany TBI and epilepsy. HOBSCOTCH is an evidence-based self-management and cognitive training program that is designed to assist people living with epilepsy manage their memory and thinking problems in order to lead happier more productive lives.
With the help of a grant from the U.S. Department of Defense, the HOBSCOTCH program has been adapted to meet the needs of civilians and Veterans with Post Traumatic Epilepsy (PTE) and will be tested in a study to determine its efficacy for improving quality of life and cognition. The HOBSCOTCH-PTE program teaches people how TBI, epilepsy, and cognitive problems can be related, and how to find strategies and solutions to better manage the day-to-day challenges that can occur.
Family caregivers play important roles in the recovery of their loved ones who suffer TBIs and develop PTE. Caregivers are invited to participate in the HOBSCOTCH-PTE study along with their loved ones who have PTE and cognitive challenges. Caregivers will also receive education about PTE and cognitive challenges, and instruction around quick relaxation exercises and mindfulness to reduce stress and cope with the adjustments of caring for a loved one with PTE.
Frequently asked questions
Are you interested in learning more about the HOBSCOTCH-PTE study? Here are some frequently asked questions.
Is this study right for me?
This study is right for you if you:
- Are 18 years or older
- Have a diagnosis of post traumatic epilepsy
- Have cognitive problems (memory, thinking, attention)
- Are willing to complete surveys
- Have telephone and internet access
How long will I be enrolled in the study?
The entire study (including surveys) is approximately 6 months with 9 one-on-one coaching sessions delivered virtually by a certified HOBSCOTCH Coach.
What are the components of the HOBSCOTCH-PTE Program?
The components of HOBSCOTCH-PTE are:
- Epilepsy and TBI education
- Self-awareness training
- Problem solving therapy
- Memory strategies
- Mindfulness and quick relaxation exercises
What will I learn?
You will learn:
- How epilepsy and seizures impact your memory and thinking
- Strategies to help with your organization, social skills and managing your epilepsy
- Ways to reduce your stress and skills to improve your memory
- Ways to improve your quality of life
Will I be paid for my time?
Yes! You will receive $15 each time you complete a set of surveys. If all sets are completed, you will receive up to $45.
Is this different than medical care?
Yes. This program does not replace regular medical care. The program is not billed to insurance and does not require a referral from your doctor.
I am interested in enrolling in the study. What are the next steps?
If you are interested in participating in the HOBSCOTCH-PTE study or have additional questions, please contact our study coordinator, Carly Sykes, MPH, by phone at 603-650-4225 or by email at HOBSCOTCH.PTE@hitchcock.org.